The process of collecting data on patient healthcare experience has continued to evolve. The qualitative and quantitative evidence often informs current and future service design, planning and delivery. The options available for patients to give feedback include print forms, text messaging, online systems and numerous standalone websites. However, more often than not, marginalised voices, such as patients with a learning disability, may be missed and it is for this reason that the  NHS has developed additional resources.

A learning disability affects the way a person understands information.They will have a lifelong difficulty learning new skills and understanding information. They may also socialise differently. This affects each person differently. But people are also disabled by the way society does not meet their needs.


Among the things to consider when reaching out for feedback from people with a learning disability:

  • Providing easy information that helps people understand what they are being asked about.
  • Not asking too many questions at once.
  • Giving people enough time to think about information and to give answers.
  • Giving people the chance to communicate in the ways that suit them best.
  • Considering whether they need help in explaining what is working well for them and what is not.


Helping people with learning disability give feedback (Easy Read)

NHS Bitesize Guide: Patient Experience and Learning Disability